I thought the girls looked beautiful in the late afternoon sunlight in their ballet costumes they wore in Coppelia last May..
|Olivia, Me, Sophia (she really is behind me), Alix|
|Noah, Isabella (yes, she is there!), Luke|
|Cousin Brendon -waiting in line for his turn on the toboggan run.|
|Aunt Marianne is probably going to really love me for putting this picture on here. Maybe she'll never know.. I can't help it - I love this shot of her - I didn't know she was so flexible!|
|Of course the hotel had a pool!|
|Cousin Brianna here from California with Joe - yay!!!!|
|Now, which one should we get?|
|This is it!|
|I wanted the front to look inviting for our Ladies' Christmas Tea on the 4th.|
I put the flowers out about 40 minutes before the ladies and girls came. It was a little chilly! But they survived the 2 hours or so just fine and we are enjoying most of them still in the house.
|I thought the girls would enjoy a fun surprise in the birdbath - these sweet carnations - on their way in for the Tea.|
|Alix and I even ironed napkins for the occasion! A rarity for me.|
|I love the red wreath - probably surprising to most people who know how fond I am of white!|
|Teapots ready, spoons, sugar and cream, cups..|
|Glenn's gingerbread... Mansion.. We love it!|
|My pretty girls! Ready for tea.|
After a couple of recent conversations about Sophia, I thought it would be helpful to let you know how you might pray for her.
The surgery accomplished its purpose in relieving her airway of the external pressure from her aortic arch. This has made a noticeable difference in how she breathes – she is quieter and can do more physically, than what she was able to do for several months. That may all sound a little clinical and un-exciting – but it’s an answer to prayers! Your prayers! We are so thankful!
So you could move her to your “Answered Prayers” or “Praise” lists!
Essentially she is much as she was before the problems that led to the surgery. She will continue to be compromised physically due to having one lung. She is prone to respiratory infections, and her symptoms are more pronounced than when the other kids are sick. She’s had pneumonia a couple of times – and it’s obvious why that would be difficult. We do our best to minimize her exposure to germs.
But we can’t put her in a bubble. She is a little girl – a strong, vibrant little girl. As long as she isn’t fighting something, you would never know anything was different about her!
So in praying for Sophia, pray that God protects her from viruses, and that when she does get something, the meds and breathing treatments will be effective. Pray that we are able to treat her here at home, instead of at a hospital. Pray that God continues to strengthen and protect her, and give wisdom to us and her doctors as she grows. Pray for the blessing of gratitude – that we are able to teach her how very much she has to be thankful for.
Not a whole lot different, in many ways, than what you are probably praying for your own little ones. But with the added knowledge that she is different. In a way that we can’t change, and in a way that does make her more vulnerable than some others.
We are rejoicing in God’s mercy to Sophia – to His kindness and graciousness to her – and to us! We are not worrying about tomorrow and what *might* happen - we are thankful to God for everything He is pleased to give us today. Blessing upon blessing. Beautiful, wonderful children!
I was afraid this would happen. That I would not be faithful to keep a blog going. But I suppose I did fulfill the primary purpose – to keep you all updated with Sophia during the time before and after her surgery.
She is doing very well! She has said less about her side hurting – and she looks and sounds wonderful. A little heavy breathing here and there that might have a slight rasp in it – but then quickly subsides. She hasn’t been sick and has just gotten stronger. During stretches last week at ballet, her teacher looked at me and commented on how strong her abdominals and back are – because she was able to hold herself so well in the “Superman” position on the floor. (It’s just what it sounds like – laying on belly with back arched up and arms out straight in front – holding it for several counts)
We went tobogganing last weekend at Pokagon in Angola, Indiana with all the Orrs. We had a wonderful time with them all as we celebrated Debbie’s 60th birthday. (Glenn’s sister) We laughed and talked and ate ice cream – we had so much fun. The kids had a great time. Noah was so worn out, either from the sledding and trudging about in heavy snow gear (or the excessive amounts of chocolate pudding he ate at dinner), that he put his head on the dinner table and fell asleep. I think it was before 7:00 p.m.
Sophia and Isabella will be 7 on the 22nd! So I am trying hard to get a couple of sewing gifts finished for them. Backpacks and dress up dresses. It may end up being more than I can accomplish in this amount of time. But I thought it would be fun to have Alix help me, so she can get more experience. The girls are very excited about their birthday, of course. They have given us a lot of helpful suggestions about gifts for several months now. I am pretty confident that no matter whether or not we actually fulfilled the specific requests, they are going to be happy. They are so easy to please.
Well – better put my money where my mouth is. Time to sew!
Here is a picture of the pattern I picked for the girls. Olivia found it on my dresser and asked me to make the purple one on the bottom for her.
If we finish them, I’ll try to put up a picture of the girls wearing them.
|3 little pilgrim girls|
|Alix in her colonial dress on her birthday - she made most of it!|
|Although it's not a bowl of oatmeal with brown sugar - there are still alot of happy thoughts in this picture!|
|place cards for our Thanksgiving dinner at Grandma and Grandpa's house last year|
| Pilgrim Mothers |
Grandma, Aunt Colleen, Me, Aunt Jennifer
|A random pilgrim children shot during our annual "play"|
Sophia continues to look a little better each day. She is eating a little more, and only needing Ibuprofin about 2-3 times a day.
Yesterday she sat down at the piano and started playing. I sat next to her, and after a few minutes, we did her piano lesson. She seemed glad to be doing something from our “normal” routine. She loves to play the piano. At the hospital, she told a nurse it was her favorite subject in school.
She has been drawing pretty ladies and pretending to be a horse – a lame horse – for much of the past few days.
I gave her a shower on Sunday and washed her hair. Neither of which she was very happy about. Afterwards, as I was getting some lotion for her, she raised her right arm and looked in the mirror. The incision site is pretty yucky looking, so when she saw it, she started crying. I reminded her that she has had similar looking wounds at the same place two times before, and God healed them quickly. He will heal her again. He has not stopped taking care of her.
As far as her breathing goes, we can tell that she sounds quieter overall. She doesn’t take as big a breath before she says something, and she is quieter when sleeping than she was before the surgery. We’re hopeful that as she continues to gain strength, and her activity increases, she will notice a big difference in her ability to breathe easier.
Thank you for continuing to pray for her! We are very grateful for all of you.
Sophia had a nice quiet night of sleep - her first all week. She is able to go longer between pain med doses and is just enjoying spending time with her sisters.
She did get sick this morning once, after a dose of oxycodone. But if she takes it again, she will be eating something with it, now that we know for sure it upsets her stomach. She took a little nap afterwards.
After lunch, we all watched Chitty Chitty Bang Bang. Sophia and I had started the movie at the hospital on Saturday morning before she was discharged.
In fact, we were watching it when the hospital pediatrician came by to see her. His name?
I’m not kidding.
Doesn’t God have a great sense of humor?
Sophia was released this morning. She already looks better. She is moving around more easily and ate a nice lunch.
Her pediatrician stopped by the hospital this morning to see her. He’s probably the only the doctor in the past week that has caused her to genuinely smile. He’s super. We talked about his recent conversations with Dr. Manning and how dramatically different her post-op x-rays look. They are the only x-rays she’s had which show part of her heart on the left side of her chest. They are very hopeful that she is going to see a big difference in her ability to breathe.
The pediatrician told me he was very proud of Sophia – of how brave and strong she has been. He said he’ll never forget when he first met her and heard her history – that from a medical standpoint she is unique and fascinating. But he was also amazed at her tenacity and strength. He said he thinks of her as his “little engine that could”. When he left, he said, “God is taking care of our Sophie.”
He certainly is!